If you received a letter/e-mail from me, you were selected to participate in a national survey to learn more about the range of activities in which breast cancer organizations engage. Even though there are hundreds of breast cancer organizations across the United States, scholars, researchers, and even other organizations do not have an overall picture of what they do. For example, we don't know how many organizations fund research or how many provide support services. This survey will provide summary statistics on how many breast cancer organizations there are, where they are located, and what they do. No information will be presented or published in any way that would permit identification of any individual or organization.
Summaries of the data will be used (1) for a book that I am writing on breast cancer organizing in the US to be published by an academic press; (2) for an executive summary that I will send to each of the survey respondents. The summary will show what other organizations do. I hope you will find it useful.
The survey is funded by the Robert Wood Johnson Foundation Scholars in Health Policy Research Program at Harvard University and is being administered by a national survey research firm, Abt SRBI (www.srbi.com).
As a reminder, your participation in the study is voluntary and your answers are confidential. All information will be presented in summary form. For example, Y% of organizations send out press releases or Z% have runs/walks. No information will be presented or published in any way to allow identification of you or your organization.
The questionnaire takes approximately 10 minutes to complete. Of course, if you have additional information you wish to share about your organization or comments/concerns, please do not hesitate to contact me at 617-496-6075 (direct) or at the e-mail above.
I know from my conversations with many of you that your organizations often have far more to do than hours in the day allow. Please know that I appreciate your participation. Your expertise is essential.